The challenges faced by patients with hereditary myopathy during the COVID-19 pandemic

Basit Öğe Kaydı
dc.contributor.authorTurken, Askeri
dc.contributor.authorCapar, Hasim
dc.contributor.authorKurt, Mehmet Emin
dc.contributor.authorCakmak, Cuma
dc.date.accessioned2024-04-24T17:38:15Z
dc.date.available2024-04-24T17:38:15Z
dc.date.issued2024
dc.departmentDicle Üniversitesien_US
dc.description.abstractBackground: Neuromuscular diseases are inherited and the prevalance of neuromuscular disease is estimated to be around 1:2000. Methods: This cross-sectional research was conducted with a qualitative research model. Data were collected from patients with an online survey using the snowball sampling method. The study was conducted in accordance with the STROBE checklist methodology. Frequencies and percentages were used to analyse demographic data, and content analysis was used for qualitative opinions. Results: Most of the participants were men and their education levels were low. Participants reported experiencing physical and socio-economic barriers to accessing healthcare. Participants also stated that these barriers have worsened since COVID-19. Conclusions: Patients with hereditary myopathy are stigmatised by society and face different problems depending on the type of disease and level of function. It is recommended that decision-makers enable patients with hereditary myopathy in exceptional situations to access healthcare services and take steps to resolve their problems.en_US
dc.identifier.endpage19en_US
dc.identifier.issn1357-6321
dc.identifier.issue1en_US
dc.identifier.pmid38308604
dc.identifier.scopus2-s2.0-85183981270
dc.identifier.scopusqualityQ3
dc.identifier.startpage12en_US
dc.identifier.urihttps://hdl.handle.net/11468/21383
dc.identifier.volume30en_US
dc.identifier.wosWOS:001184351500003
dc.identifier.wosqualityN/A
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakPubMed
dc.language.isoenen_US
dc.publisherMa Healthcare Ltden_US
dc.relation.ispartofInternational Journal of Palliative Nursing
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.subjectInherited Myopathyen_US
dc.subjectAccess To Health Servicesen_US
dc.subjectOrphan Diseaseen_US
dc.subjectPandemicen_US
dc.titleThe challenges faced by patients with hereditary myopathy during the COVID-19 pandemicen_US
dc.titleThe challenges faced by patients with hereditary myopathy during the COVID-19 pandemic
dc.typeArticleen_US

Dosyalar

Koleksiyon

WoS İndeksli Yayınlar Koleksiyonu
PubMed İndeksli Yayın Koleksiyonu
Scopus İndeksli Yayınlar Koleksiyonu