Browsing by Author "Emiralioğlu, Nagehan"

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Geographical barriers to timely diagnosis of cystic fibrosis and anxiety level of parents during newborn screening in Turkey

Gökdemir, Yasemin; Eyüboğlu, Tuğba Şişmanlar; Emiralioğlu, Nagehan; Er, Berrin; Şen, Velat; Pekcan, Sevgi; Ergenekon, Almala Pınar (Wiley, 2021)

Background Despite the availability of cystic fibrosis (CF) screening countrywide, diagnostic delay is still a crucial issue. The objectives of this study were to explore the stages of the NBS process, determine the risk ...
The success of the Cystic Fibrosis Registry of Turkey for improvement of patient care

Asfuroğlu, Pelin; Eyüboğlu, Tuğba Şişmanlar; Aslan, Ayşe Tana; Gürsoy, Tuğba Ramaslı; Emiralioğlu, Nagehan; Yalçın, Ebru; Şen, Velat; Şen, Hadice Selimoğlu (Wiley, 2022)

Background Cystic fibrosis (CF) registries play an essential role in improving disease outcomes of people with CF. This study aimed to evaluate the association of newly established CF registry system in Turkey on follow-up, ...